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Fragile X Clinic now at Twinsburg Location

Posted by on Oct 18, 2012 in Cleveland, Feature, News | 0 comments

Fragile X Clinic now at Twinsburg Location

Dr. Delahunty is now seeing patients at the Twinsburg Cleveland Clinic in addition to the Cleveland Clinic Children’s Hospital for Rehabilitation in Shaker Heights and Strongsville Family Health Center. Click here for our New FX Clinic Brochure! Cleveland Clinic Childrens Fragile X Brochure If this is your first appointment with Dr. Delahunty, you MUST contact our Clinic Coordinator, Cindy Antczak at 216-448-6119 or email her at antczac2@ccf.org.  The full Fragile X Clinic is held on the first Monday of the month. Initial Fragile X Clinic appointments must be done at the Shaker Campus. After a patient has an initial visit then they are free to see Dr. Delahunty at either Shaker, Strongsville or Twinsburg. Cleveland Clinic Children’s Hospital for Rehabilitation 2801 MLK Jr. Dr. Cleveland, OH 44104 Phone: 216-448-6203 Fax: 216-448-6061 For Appointments: 216-448-6179 Click below to print out a social story for your child if you are visiting the Shaker Office! Delahunty-Social-Story-Shaker Strongsville Family Health Center 16761 SouthPark Center Strongsville, OH 44136 Phone: 440-878-2500 Fax: 440-878-3185 Click below to print out a social story for your child if you are visiting the Strongsville office! strongsville_childrens_hospital_experience Cleveland Clinic Twinsburg 8701 Darrow Road Twinsburg, OH 44087 Phone:...

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Family Swim Party

Posted by on Oct 11, 2012 in Archived Articles | 0 comments

Family Swim Party

Our Family Swim Party was held on Sunday, August 26th at the Boise Family Pool. It was a beautiful day that was enjoyed by all. Michael is having...

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Cincinnati Fragile X Clinic

Posted by on Aug 4, 2012 in Archived Articles | 2 comments

Cincinnati Fragile X Clinic

Dr. Craig Erickson is seeing patients at the Fragile X Research and Treatment Center at Cincinnati Children’s Hospital. For an appointment, call the clinic coordinator, Katie Friedmann, RN at (513) 636-0523 or email at katherine.friedmann@cchmc.org or fragilex@cchmc.org. Cincinnati Fragile X Research and Treatment Center Cincinnati Children’s Hospital Medical Center 3333 Burnet Avenue, MLC 4002 Cincinnati, OH 45229 (513) 636-0526...

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iPad Apps

Posted by on Aug 1, 2012 in News | 0 comments

iPad Apps

Ever since the iPad was released in 2010, it has become an invaluable communication and learning tool. Use the link below to download a PDF full useful apps. Download the iPad App Guide

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Columbus X Ball

Posted by on Jun 4, 2012 in Archived Articles | 0 comments

Columbus X Ball

The Columbus Chapter of FRAXA hosted the FRAXA X Ball on April 28, 2012. It was a fun and fabulous event that drew 350 people and raised over $70k. This 10th annual fundraiser was hosted by 6 Fragile X families. This will become a biannual event, so please join us next time in the spring of 2014! The following video was created Tim Heiman, one of the event hosts. This features some of the Columbus families and was shown at the event. It is an extraordinary video that has helped to raise awareness. Honored guests, Jim Cantore (The Weather Channel Storm Tracker), Katie Clapp (FRAXA President and Co-Founder), and Leslie Eddy (FRAXA Board Member and Gold Sponsor). Jim Cantore with Leslie and Ara Bagdasarian (FX Alliance of OH Presidents), who won his autographed Weather Channel jacket in the live auction Columbus X Ball hosts Shelly Frederick, Patty Curreri, Judith Maloney, Stacy Seigel, Debbie Heiman, and Karin Myers...

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