Posts by Editor

Stanford Research Study

Posted by on Mar 6, 2015 in Clinical Research | 0 comments

Stanford Research Study

We are currently looking for male teens, ages 10-18, with a diagnosis of Fragile X for a study on severe challenging behavior, such as aggression and self-injury. The study is not part of a clinical trial, and does not have any invasive medical components, such as a blood draw or MRI. Would you be open to distributing the flyer attached to the families in your chapter or group, or sharing our Facebook link below on any of your social media pages? The flyer also contains a link to a brief survey to determine initial eligibility. Thank you for your time and please feel free to contact me with any questions! Rebecca Barnett Survey: https://stanforduniversity.qualtrics.com/SE/?SID=SV_9Mka3Nw0Nwf38MZ On Facebook: https://www.facebook.com/pages/Center-for-Interdisciplinary-Brain-Sciences-Research-at-Stanford-University/182813461757119 — Rebecca Barnett, M.S., BCBA Research Assistant Work: (650)724-7395 Fax: (650)724-4794 Email: rbarnet2@stanford.edu Center for Interdisciplinary Brain Sciences Research Dept. of Psychiatry and Behavioral Sciences Stanford University School of Medicine 401 Quarry Rd., MC 5795 Stanford, CA 94305-5795 Website: http://cibsr.stanford.edu/ Click below for the study flyer. Stanford Study...

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Cleveland Clinic Parent Notebook is Complete!

Posted by on Aug 14, 2014 in Cleveland, Feature | 0 comments

Cleveland Clinic Parent Notebook is Complete!

We are excited to announce that the Parent Notebook for our Cleveland Clinic is complete! These are handed out at our Fragile X Clinic when families are newly diagnosed but there is information inside for all families dealing with Fragile X. We hope it is helpful! To view the Parent Notebook please click below. FINAL Fragile X...

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Comprehensive Resource Listing for Northeast Ohio!

Posted by on Oct 19, 2013 in Cleveland, News | 0 comments

Milestones, a local autism agency, has graciously allowed us to link to their website which contains a fabulous resource list of providers and agencies that might be helpful to you and your children! Learn more at Milestones

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My Child Turned 18. What Do I Do?

Posted by on Oct 17, 2013 in Feature | 0 comments

My Child Turned 18. What Do I Do?

Things to consider when you are responsible for a disabled adult! An easy-to-read, informative article which talks about Guardianship, Supplemental Security Income (SSI), Special Needs Trusts and Medicaid. Click here for the article — MyChildTurned18

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FXTAS Treatment at Cleveland Clinic

Posted by on Feb 19, 2013 in Cleveland, Feature, News | 0 comments

FXTAS Treatment at Cleveland Clinic

Dr. Ilia Iten is seeing patients for the evaluation and treatment of FXTAS at the Center for Neurological Restoration at the Cleveland Clinic Main Campus. Appointments can be scheduled by calling...

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