About Us

The Fragile X Alliance of Ohio was started in 1996 by a group of parents in the Cleveland, Ohio metropolitan area who have children affected by Fragile X Syndrome. Present membership is over 90 families.

The Goals of the group are to:

  1. Provide mutual support and information to Fragile X families in Ohio.
  2. Promote the education and awareness of Fragile X Syndrome to physicians, therapists, educators and the general public.
  3. Support and promote research on Fragile X Syndrome.

We are a local chapter of the FRAXA Research Foundation and a LINKS resource group for the National Fragile X Foundation. All families are welcome to join our group – we all share the common bond of having Fragile X syndrome in our families – affecting our lives and those of our children.

Fragile X Alliance of Ohio Board of Trustees

  • Leslie Bagdasarian, President
  • Ara A. Bagdasarian
  • Julianne Boise
  • Scott Schneider
  • Amy Statt