News, events and information from the Cleveland support group.

There are many families living with Fragile X Syndrome in the Cleveland/Akron metropolitan areas. Please contact Leslie Bagdasarian – if you would like to make contact with our support group.



(Click on Resources tab above for additional listings)

Cuyahoga County Board of Developmental Disabilities

Who to contact if your child is diagnosed with a developmental disability

Other Nearby County Boards:

Opportunities for Ohioans with Disabilities (formerly BVR)

OOD works with partners in business, education and non-profit organizations to facilitate customized employment plans for Ohioans with disabilities

  • 14650 Detroit Avenue, Suite 300, Lakewood, OH 44107
  • Phone: 216-227-3250/216-227-3292 TTY

Cuyahoga County Special Education Service Center

For questions about Transition services, educational services, college and parent mentors

The ARC of Greater Cleveland


Probate Court of Cuyahoga County

Cleveland Clinic Parent Notebook is Complete!

Posted by on Aug 14, 2014 in Cleveland, Feature | 0 comments

Revised Parent NotebookWe are excited to announce that the Parent Notebook for our Cleveland Clinic is complete! These are handed out at our Fragile X Clinic when families are newly diagnosed but there is information inside for all families dealing with Fragile X. We hope it is helpful!

To view the Parent Notebook please click below.
FINAL Fragile X Notebook2014

Comprehensive Resource Listing for Northeast Ohio!

Posted by on Oct 19, 2013 in Cleveland, News | 0 comments

Milestones, a local autism agency, has graciously allowed us to link to their website which contains a fabulous resource list of providers and agencies that might be helpful to you and your children!


FXTAS Treatment at Cleveland Clinic

Posted by on Feb 19, 2013 in Cleveland, Feature, News | 0 comments

Dr. Ilia Iten is seeing patients for the evaluation and treatment of FXTAS at the Center for Neurological Restoration at the Cleveland Clinic Main Campus. Appointments can be scheduled by calling 216-444-2210.

Fragile X Clinic now at Twinsburg Location

Posted by on Oct 18, 2012 in Cleveland, Feature, News | 0 comments

Dr. Delahunty is now seeing patients at the Twinsburg Cleveland Clinic in addition to the Cleveland Clinic Children’s Hospital for Rehabilitation in Shaker Heights and Strongsville Family Health Center.

Click here for our New FX Clinic Brochure!

Cleveland Clinic Childrens Fragile X Brochure

If this is your first appointment with Dr. Delahunty, you MUST contact our Clinic Coordinator, Cindy Antczak at 216-448-6119 or email her at  The full Fragile X Clinic is held on the first Monday of the month. Initial Fragile X Clinic appointments must be done at the Shaker Campus. After a patient has an initial visit then they are free to see Dr. Delahunty at either Shaker, Strongsville or Twinsburg.

Cleveland Clinic Children’s Hospital for Rehabilitation

  • 2801 MLK Jr. Dr.
  • Cleveland, OH 44104
  • Phone: 216-448-6203
  • Fax: 216-448-6061
  • For Appointments: 216-448-6179

Click below to print out a social story for your child if you are visiting the Shaker Office!


Strongsville Family Health Center

  • 16761 SouthPark Center
  • Strongsville, OH 44136
  • Phone: 440-878-2500
  • Fax: 440-878-3185
Click below to print out a social story for your child if you are visiting the Strongsville office!


Cleveland Clinic Twinsburg

  • 8701 Darrow Road
  • Twinsburg, OH 44087
  • Phone: 330-888-4000